Rileigh had her follow up appointment with the Ophthalmologist today and we were very pleased with the news. Her vision is getting better! Rob and I already figured this, but it was nice to hear it from the doctor. The doctor did say that she still has an astigmatism in both eyes, but that they are getting better and she is getting more far sighted, which is a good thing. Her nystagmus is still there and he noticed how she holds her head down sometimes when she is focusing on something. Since she showed so much improvement, the doctor said Rileigh could go another 6 months without glasses to see if she improves anymore on her own. The one thing he did tell me to do was to make sure that I have sunglasses or a hat on her at all times when she is outside because her eyes are so sensitive to the sun.
As if that is not good news enough, I decided to call the genetics doctor today. It was really weighing on me that it was going to take 4-6 weeks to get all Rileigh's test results, so I called to check in. The results were in and every thing is NEGATIVE!! This means that Rileigh does not have Hermansky-Pudlok Syndrome, her skull openings are normal and are not closing up, and all of her organs are functioning properly. What a blessing! Now she just has to pass her hearing test in July (which I have no worries about) and make it through her cardiology appointment. This could not have been a better day for us.
Thank you to everyone for your thoughts and prayers!
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